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Category: autism

A surprising story by Danielle Elliot in The Atlantic about children with autism begins with an anecdote that is so disturbing you might be inclined to stop reading. But you...

A surprising story by Danielle Elliot in The Atlantic about children with autism begins with an anecdote that is so disturbing you might be inclined to stop reading. But you shouldn't.

The anecdote is about a 12-year-old boy who is scratching and picking at his face, gnawing on the side of his thumb, and tearing cuts on his stomach, causing such severe damage that his parents were ready to move him to a residential facility; they couldn't protect him at home.

Before they made that move, they were referred to a pediatric gastroenterologist at Columbia, who recalled that when she saw him "there was blood everywhere," and that the boy screamed and paced around the room during his visit. Rather than attacking the symptoms directly with psychiatric drugs, she treated him for constipation. "Research is showing...

Andrew Wakefield, the disgraced vaccine critic who claimed to link vaccines to autism and helped create a worldwide anti-vaccine movement, was featured prominently on the front page of a British newspaper over the weekend.

Wakefield's paper claiming a link between the MMR vaccine and autism was...

Andrew Wakefield, the disgraced vaccine critic who claimed to link vaccines to autism and helped create a worldwide anti-vaccine movement, was featured prominently on the front page of a British newspaper over the weekend.

Wakefield's paper claiming a link between the MMR vaccine and autism was later retracted. An investigation has accused him of fraud. And numerous studies have failed to find any evidence that vaccines cause autism. Yet a press release that he issued was reprinted by Britain's The Independent as if it were an Op-Ed comment.

In the press release, Wakefield, who may have done more than any other individual to discourage parents from vaccinating their children, blamed the government for a measles outbreak in the UK that has afflicted nearly...

In November, I praised "a chilling story" by Peter Whoriskey in The Washington Post [that] shows how drug companies have misused their influence and their expertise to corrupt...

In November, I praised "a chilling story" by Peter Whoriskey in The Washington Post [that] shows how drug companies have misused their influence and their expertise to corrupt and distort research on new drugs." It was an important piece.

Now he is back with another pharmaceutical industry story, which leads with whether antidepressants should be prescribed to people suffering from grief such as that produced by the loss of a spouse. This time, I think Whoriskey has missed something important.

Both stories are part of a Post special report entitled "Can Medical Research Be Trusted?" These are important stories, and we need this kind of tough reporting on the powerful pharmaceutical industry. The stories detail suspicious practices by the pharmaceutical industry that have led to increased profits--sometimes at the...

In the aftermath of the horrific Newtown shooting, media reports began to circulate that the shooter, 20-year-old Adam Lanza, had been diagnosed with Asperger's syndome. Although neither the family nor health care professionals involved in treatment have officially confirmed this, an unfortunate number of news...

In the aftermath of the horrific Newtown shooting, media reports began to circulate that the shooter, 20-year-old Adam Lanza, had been diagnosed with Asperger's syndome. Although neither the family nor health care professionals involved in treatment have officially confirmed this, an unfortunate number of news media outlets leapt on this as a possible explanation for the murderous outcome.

But the actual information was so sketchy that we ended up with stories that read occasionally sketchy as well, like this section from a David Halbfinger piece in The New York Times, in which former Lanza classmates were cited as follows: "Several said in separate interviews that it was their understanding that he had a developmental disorder. They said they had been told that the disorder was Asperger’s syndrome, which is...

Benedict Carey at The New York Times has done a nice job threading his way through the complexities and controversies surrounding the approval of the new edition of the psychiatrists' diagnostic manual, known as the DSM-5...

Benedict Carey at The New York Times has done a nice job threading his way through the complexities and controversies surrounding the approval of the new edition of the psychiatrists' diagnostic manual, known as the DSM-5. In a story headlined "A Tense Compromise on Defining Disorders," he focuses on three revisions that caused particular concern among both professionals and activists. Those revisions concerned the diagnosis of depression, autism, and pediatric bipolar disorder.

He explains the changes and the significance of those changes. In each case, the revisions could mean that some people diagnosed with those disorders by the criteria in DSM-4 will no longer have them when evaluated by the criteria in the DSM-5. And, he notes, the reverse is...

Faulty and irresponsible reporting on a study finding an association between air pollution and autism has drawn the ire of the scientist and science blogger Emily Willingham--and deservedly so.

In...

Faulty and irresponsible reporting on a study finding an association between air pollution and autism has drawn the ire of the scientist and science blogger Emily Willingham--and deservedly so.

In a post at Forbes, Willingham examines coverage of a study in the Archives of General Psychiatry that found that "exposure to traffic-related air pollution, nitrogen dioxide, PM2.5, and PM10 during pregnancy and during the first year of life was associated with autism." (PM2.5 and PM10 refer to particles less than 2.5 and 10 microns in diameter.)

The researchers go on to say that further study is needed to determine whether this exposure causes autism.

Willingham didn't have to burrow deeply into the science or the coverage of...

A lot of ink and pixels were spilled this week on a study that found "that maternal influenza infection was associated with a twofold increased risk of infantile autism," and "prolonged episodes of fever...

A lot of ink and pixels were spilled this week on a study that found "that maternal influenza infection was associated with a twofold increased risk of infantile autism," and "prolonged episodes of fever caused a threefold increased risk of infantile autism."

I can hear some readers howling already: The study did not find that fever "caused" an increased risk of autism, they're shouting. This is an association, not a finding of cause-and-effect. But "caused" comes directly from the "results" section of the abstract. To confuse things even further, the researchers report the following in the "conclusions" portion of the abstract:

Our results do not suggest that mild infections, febrile episodes, or use of...

Memoir is a tricky business, and writers who have not written much about themselves can have a hard time grappling with it. How much should a writer tell? What should be kept private? How should a writer portray his or her own foibles, mistakes, and triumphs on the page, without sounding weepy, stiff and artificial...

Memoir is a tricky business, and writers who have not written much about themselves can have a hard time grappling with it. How much should a writer tell? What should be kept private? How should a writer portray his or her own foibles, mistakes, and triumphs on the page, without sounding weepy, stiff and artificial, or far too self-involved?

This problem arises when writers experience something personally that they feel compelled to write about, even if they haven't written much about themselves before. I don't know a lot about the work of the science writer Eugenie Samuel Reich, but a quick scan of her work online suggests she is a journalist, not a memoirist. Yet she has taken on a difficult and personal subject in a recent article on Slate entitled "When is it...

When the Chicago-Sun Times said it was hiring Jenny McCarthy--Playboy playmate, actress, model, ex-girlfriend of Jim Carrey, and notorious proponent of a vaccine-autism link--to write a lifestyle blog, it rekindled the ferocious debate over vaccines and autism. (Admittedly, it...

When the Chicago-Sun Times said it was hiring Jenny McCarthy--Playboy playmate, actress, model, ex-girlfriend of Jim Carrey, and notorious proponent of a vaccine-autism link--to write a lifestyle blog, it rekindled the ferocious debate over vaccines and autism. (Admittedly, it doesn't take much to stoke that debate.)

When I posted on the hiring four days ago, the Sun-Times emailed me to say that her blog and column would not be merely about parenting, but that they would also deal with "lifestyle issues," including "family, dating, relationships, fitness and yes, parenting as a single mom."

The paper did not address the vaccine issue in that email. But now it has.

In an email today, a spokeswoman for the Sun-Times said, "Jenny McCarthy has signed on to share her special brand of humor with fans through her...

Jenny McCarthy--yes, that Jenny McCarthy, Playboy playmate, actress, model, ex-girlfriend of Jim Carrey, and notorious proponent of a vaccine-autism link--has been hired by the Chicago Sun-Times to write a daily blog on parenting, dating, and "family issues,"...

Jenny McCarthy--yes, that Jenny McCarthy, Playboy playmate, actress, model, ex-girlfriend of Jim Carrey, and notorious proponent of a vaccine-autism link--has been hired by the Chicago Sun-Times to write a daily blog on parenting, dating, and "family issues," the paper reports.

McCarthy's blog will run Monday through Friday. In addition, she "will debut a cheeky weekly advice column called 'Ask Jenny' inside the Splash print edition," the Sun-Times says. "Splash" is the paper's Lifestyles section, which runs daily online and is where McCarthy's blog posts will appear. (I'll have more to say about Splash in a moment; it has serious problems of its own.)

Knowing nothing about McCarthy's personal life, I'll grant that she is a mother who cares about her child; I don't have any reason to...

Research is bubbling up from Australia today that researchers at the University of Melbourne have devised a genetic test to predict autism. Several of the early stories say it in slightly different ways, but nobody seems to get it quite right. 

Reuters...

Research is bubbling up from Australia today that researchers at the University of Melbourne have devised a genetic test to predict autism. Several of the early stories say it in slightly different ways, but nobody seems to get it quite right. 

Reuters leads with "Australian scientists have developed a genetic test to predict autism spectrum disorder in children..." A story on the website of ABC, the Australian radio and television network, runs under the headline "Researchers develop genetic test for autism." Would that it were so.

A press release from the University of Melbourne, which presumably gave rise to the coverage, confounds...

I posted earlier on the late-August study adding new evidence to the link between older fathers and autism and other ailments, and Deborah Blum...

I posted earlier on the late-August study adding new evidence to the link between older fathers and autism and other ailments, and Deborah Blum posted on a story looking at the implications for the human gene pool. But there is, I think, one more thing to say about the coverage.

The study received wide attention, even though this link has been clear for years. Most of the coverage missed what was new about this study, which did indeed add significant evidence to what had already been known. But something very important was largely missed. And I count that as a general failure of the press.

Much of the coverage was simply silly, amounting to this: OK, men, now you have to worry about your biological clocks, too! ...

Earlier this week, science blogger Emily Willingham took apart - in elegant detail - an opinion piece in the Sunday New York Times which proposed an infectious disease theory of autism (treatable, apparently, by parasitic worms.)  You can read the commentary on both pieces that I...

Earlier this week, science blogger Emily Willingham took apart - in elegant detail - an opinion piece in the Sunday New York Times which proposed an infectious disease theory of autism (treatable, apparently, by parasitic worms.)  You can read the commentary on both pieces that I posted on Tracker here.

She followed that up with a post titled, "Writing About Autism Science? 10 Things" which should be required reading in science journalism classrooms - and in newsrooms as well. Although many of her suggestions are focused on covering autism in particular, the essay also makes some vital points about science journalism in general. The list ranges from interviewing suggestions to cautionary lessons about interpreting risk research and correlation studies...

Last week, the journal Nature published a paper titled "Risk of de novo mutations and the importance of the father's age to disease risk." As Paul Raeburn...

Last week, the journal Nature published a paper titled "Risk of de novo mutations and the importance of the father's age to disease risk." As Paul Raeburn noted here at the Tracker, the resulting coverage focused almost entirely on whether aging fathers could be suddenly seen as a significant contribution to autism cases.

Perhaps that emphasis isn't surprising given the fact that autism is a high-profile condition and given that earlier stories had put more emphasis on the age of the mother.  But, as science writer Seth Mnookin points out in a Monday post at New Yorker.com, the...

The idea that older women have an increased risk of having a child with autism has received a lot of press. Many women trying to juggle families and careers weigh this carefully while making their plans. The medical profession did a good job getting the word out on this.

What is not generally known, however...

The idea that older women have an increased risk of having a child with autism has received a lot of press. Many women trying to juggle families and careers weigh this carefully while making their plans. The medical profession did a good job getting the word out on this.

What is not generally known, however, is that children of older fathers also face increased risks of certain illnesses, including, notably, autism and schizophrenia. That has been known to researchers for some time, but medicine has done a terrible job of getting the word out on fathers. A paper appearing today in Nature, however, has attracted a lot of attention and could begin to change that.

Over at The Wall Street JournalGautam Naik is a little bit fuzzy about what precisely is new in the Nature paper; he mostly discusses...