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2Oct 2012

ADHD and the practice of science journalism as a deficit disorder

Adderall/Wikimedia Commons

About two weeks ago, the journal PLoS ONE published an article titled "Why Most Biomedical Findings Echoed by Newspapers Turn Out to be False: The Case of Attention Deficit Hyperactivity Disorder."

As The Economist noted in a September 22 story titled Reporting Science: Journalistic Deficit Disorder, this did not turn out to be a popular subject with newspaper reporters themselves, in fact, "as The Economist went to press, a search on Google News suggested that, a week after its publication, not a single newspaper had reported [the] paper."

In fact, the only reason I knew about the paper is that Andy Revkin at The New York Times called my attention to it, both by e-mail and in an excellent DotEarth post yesterday, which puts this study into a thoughtful context of other related research. His post, From Abstract to News Release to Story, a Tilt to the 'Front Page Thought', is wholly worth reading.

But I want to step back for a minute to the PLoS ONE study. The lead author, Francoise Gonon of the University of Bordeaux and his colleagues, began by pointing out that "because positive biomedical observations are more often published than those reporting no effect, initial observations are often refuted or attenuated by subsequent studies." They wondered whether newspapers tend to preferentially pick up on these positive reports and whether they also followed up by reporting on studies that refuted or weakened the initial findings.

After selecting the condition Attention Deficit Hyperactivity Disorder as a focus, the researchers searched databases that archived both medical research and newspaper publications during the 1990s. They found 47 papers in high-profile journals on ADHD and 347 resulting English language newspaper stories. They then selected the 10 papers that had received the most coverage. Of those papers, seven were based on new hypotheses about ADHD. Gonon's analysis of later papers found that six of those seven hypotheses were either refuted by other scientists or found to be flawed. The seventh received poor reviews. The remaining three were designed to confirm existing theories. Two held up well, one, as the literature showed, did not.

All of this is, of course, part of the normal process of science. But Gonon and his colleagues found that for most the part, journalists ignored all the work that evaluated the initial studies, which would unfortunately seem to leave readers with the impression that ADHD science was nothing but a giant celebration of positive findings.

As the resarchers concluded, "Because newspapers preferentially echo initial ADHD findings appearing in prominent journals, they report on uncertain findings that are often refuted or attenuated by subsequent studies. If this media reporting bias generalizes to health sciences, it represents a major cause of distortion in health science communication."

And as The Economist noted, it's not necessarily surprising that journalists chose not to cover a study that didn't reflect all that well on their own work.  I did make a point of doing Google News search and found that media had mostly looked the other way. I found perhaps three or four other stories about Gonon's work,  notably a piece by Peter McKnight in The Vancouver Sun that emphasized the key point that one study never tells the whole story.

And that point emphasizes why we science writers should actually be paying attention to this kind of research. It doesn't cast us in the most flattering light. But if we're want to do this better, to escape what Revkin has sometimes called the single study syndrome, then we need to pay attention to what we've done wrong so that we can start getting it right.

We don't do ourselves any favors, and in this particular case, we don't do readers trying to understand and deal with ADHD any favors, if we persist in skewing the results.

Comments

Our view includes the following:

  • Pop media is all about supporting the status quo ideologies and beliefs
  • The best science debunks cherished ideologies and the status quo, by definition.  If medicine doesn't destroy the status quo people die.
  • Brain research has shown our minds literally can't pay attention, time or money to ideas that conflict with our beliefs.
  • Therefore pop science is an oxymoron.  

What journalists have to do to capture and keep attention, "eyeballs" now, is going to anthetical to science and evidence-based knowledge.

In addition, natural and everyday language is just horrible at conveying data and evidence which are the basis of all science -- not words.  Journalists get paid by the word; scientists get "paid" more the fewer words they use.  Think of your doctor.

Paul, I think one of the best things about the digital world is that we can so easily see these patterns -  and let them put us on notice that we can be smarter about this.

I don't think every general science reporter can track every story. But there are plenty of us who follow certain specialties who could use this kind of awareness to track studies in our area of interest. I doubt that we'll ever put an end to the single study story but I do think that responsibly we can revisit some of these stories and see if they hold up. And I think we should.

And, of course, the great thing about on-line journalism is that you can link to a great deal of context, even with a single study. And perhaps that's one of the answers that will evolve here as we think more about how to make more effective use of new media.

Interesting post, Deb, but I'm not sure what the lesson is for science reporters.

We certainly can't scan the literature for follow-up studies of everything we've written; we'd be consumed by it, especially those of us who are filing daily. Further, this study was published some 20 years after the initial positive findings were published in the 1990s, if I understand it correctly. Can we expect science writers to look for negative studies for 20 years after they've spent two hours writing a 500-word story?

I see the problem, of course. I'm just not sure what the solution is, unless the journals that published the original findings take note of subsequent refutations themselves, in the scientific literature.

 

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